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How people make decisions about predictive genetic testing: An analogue study 

Authors: Bethan J. Henderson a;  Bryan T. Maguire b;  Jonathon Gray c; Valerie Morrison d
Affiliations:   a Institute of Medical and Social Care Research, University of Wales, Ireland
b Department of Science, Dun Laoghaire Institute of Art Design and Technology, Ireland
c Institute of Medical Genetics, Cardiff & Vale NHS Trust, Wales University,
d School of Psychology, University of Wales,
DOI: 10.1080/14768320500411058
Publication Frequency: 10 issues per year
Published in: journal Psychology & Health, Volume 21, Issue 4 August 2006 , pages 513 - 539
Formats available: HTML (English) : PDF (English)
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Abstract

Predictive genetic testing will be possible for more common diseases in the future. Little is known, however, about the decision process people go through when considering genetic testing. This study looked at peoples' decisions to seek professional advice on genetic testing for a hypothetical adult onset disease. Twenty individuals were presented with a decision scenario and verbal protocols were collected whilst participants worked through information relevant to the decision. Information was presented to participants via a computer and each participant's path through the information was recorded. Analysis of the data demonstrated that whilst most participants evaluated the consequences of the various decision options, this strategy was embedded within a variety of decision making styles. These were identified as conflicted change, unconflicted change, worst case scenario, dominant moral stance, naturalistic style, and vigilance respectively. Implications for clinical practice and future research are discussed.
Keywords: Decision making; predictive genetic testing; process tracing; styles of decision making
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